DAY 1: THURSDAY, 20 JANUARY 2022
(BANGKOK LOCAL TIME GMT+7)

13.00 hrs – 13.20 hrs

Welcome Speeches

Peter Streibl

General Manager, Takeda Thailand

Prof. Dr. Thanyachai Sura

Co-host, President, APSHG, MGGA, Thailand

13.20 hrs – 13.40 hrs

Opening Remarks and Keynote Speech

Healthcare in Thailand: An Ambition to Achieve a Broader Medical Access for All

H.E. Mr. Anutin Charnvirakul

Deputy Prime Minister and Minister of Public Health, Thailand

13.40 hrs – 14.10 hrs

Plenary Session

The Exploratory Frontier for Diagnosis and the Innovative Future of Diagnostics

Sivasangaran Kumaran

Representative of Microsoft Corp and Rare Disease Advocate

14.10 hrs – 14.20 hrs

Break

14.20 hrs – 15.20 hrs

Panel Discussion 1

Redefining the Diagnosis

How Do Public Health Programs Successfully Support the Diagnosis of Rare Diseases?

Moderator:

Dr. Phichai Kanitcharaskul

Medical Affairs Head, Takeda Thailand

Panelists:

Prof. Dr. Kanya Suphapeetiporn

Chulalongkorn University, Thailand

Dr. Vu Chi Dung

Vietnam National Children’s Hospital, Hanoi, Vietnam

Prof. Dr. dr. Damayanti Rusli Sjarif SpA(K)

Cipto Mangunkusumo National Referral Hospital, Indonesia

Prof. Yin-Hsiu Chien

National Taiwan University Hospital, Taiwan

15.20 hrs – 16.05 hrs

Panel Discussion 2

Empowering Patient Voices

Challenges in the Diagnosis Journey - Empowering Patients’ Voices

Moderator:

Dr. Phichai Kanitcharaskul

Medical Affairs Head, Takeda Thailand

Panelists:

Preeya Singhnarula

President, Thai Rare Disease Foundation, Thailand

Rajakanath R

Programme Director, Rare Disorders Society, Singapore

Dr. Durhane Wong-Rieger

President, APARDO

16.05 hrs – 16.15 hrs

Summary and Closing of Day 1

DAY 2: FRIDAY, 21 JANUARY 2022
(BANGKOK LOCAL TIME GMT+7)

13.00 hrs – 13.10 hrs

Recap Session from Day 1

13.10 hrs – 13.20 hrs

Welcome Speech​

Preeya Singhnarula

President, Thai Rare Disease Foundation, Thailand

13.20 hrs – 13.40 hrs

Plenary Session​

APEC Action Plan on Rare Diseases: Focusing on New and Accessible Treatments​

Prof. Matthew Bellgard

Chair of APEC Rare Disease Network

13.40 hrs – 14.00 hrs

Plenary Session​

From Rare Disease Framework to Action: Thailand Perspective

Assoc. Prof. Dr. Cherdchai Nopmaneejumruslers

Chairman and Working Group Committee of Rare Disease, NHSO and Deputy Director, Siriraj Hospital, Thailand

14.00 hrs – 14.20 hrs

Plenary Session

Post-Pandemic Era: New Perspective in Rare Disease Access

Prof. Dr. Meow-Keong Thong

University of Malaya, Malaysia

14.20 hrs – 14.30 hrs

Break

14.30 hrs – 15.10 hrs

Panel Discussion 3

The Strategic Priorities to Improve Rare Disease Care 

Shaping a Future With No One Left Behind: Advancing the Rare Disease Act

Moderator:

Assoc. Prof. Dr. Cherdchai Nopmaneejumruslers

Chairman and Working Group Committee of Rare Disease, NHSO and Deputy Director, Siriraj Hospital, Thailand

Panelists:

Dr. Carmencita D. Padilla, MAHPS

Chancellor, University of the Philippines Manila

Prof. Madhulika Kabra

All India Institute of Medical Sciences, India

15.10 hrs – 16.10 hrs

Panel Discussion 4

Innovative Approaches for Sustainable Access: The Theory vs the Real World

The Elephant in the Room: Gaps, Inequality, and the Way Forward in Funding and Financing

Moderator:

Assoc. Prof. Dr. Cherdchai Nopmaneejumruslers

Chairman and Working Group Committee of Rare Disease, NHSO and Deputy Director, Siriraj Hospital, Thailand

Panelists:

Prof. Dr. Duangrurdee Wattanasirichaigoon

Ramathibodi Hospital, Thailand

Dr. Nguyen Khanh Phuong

Vice-director of Health Strategy and Policy Institute, Ministry of Health, Vietnam

Dr. Carmencita D. Padilla, MAHPS

Chancellor, University of the Philippines Manila

Prof. Ming-Chin Yang

National Taiwan University, Taiwan

16.10 hrs - 16.20 hrs

Our Unwavering Commitment to Rare Disease Patients Across SEA

Thomas Willemsen

Area SVP Asia Pacific, Takeda

16.20 hrs - 16.30 hrs

Recap Session of Day 2

UNITING TO CREATE BRIGHTER FUTURES FOR PEOPLE WITH RARE DISEASES

C-ANPROM/TH/RDM/0008: Jan’2