(BANGKOK LOCAL TIME GMT+7)
13.00 hrs – 13.20 hrs | ||
Peter Streibl | ||
General Manager, Takeda Thailand | ||
Prof. Dr. Thanyachai Sura | ||
Co-host, President, APSHG, MGGA, Thailand | ||
13.20 hrs – 13.40 hrs | ||
Healthcare in Thailand: An Ambition to Achieve a Broader Medical Access for All | ||
H.E. Mr. Anutin Charnvirakul | ||
Deputy Prime Minister and Minister of Public Health, Thailand | ||
13.40 hrs – 14.10 hrs | ||
The Exploratory Frontier for Diagnosis and the Innovative Future of Diagnostics | ||
Sivasangaran Kumaran | ||
Representative of Microsoft Corp and Rare Disease Advocate | ||
14.10 hrs – 14.20 hrs | Break | |
14.20 hrs – 15.20 hrs | ||
How Do Public Health Programs Successfully Support the Diagnosis of Rare Diseases? | ||
Moderator: | ||
Dr. Phichai Kanitcharaskul | ||
Medical Affairs Head, Takeda Thailand | ||
Panelists: | ||
Prof. Dr. Kanya Suphapeetiporn | ||
Chulalongkorn University, Thailand | ||
Dr. Vu Chi Dung | ||
Vietnam National Children’s Hospital, Hanoi, Vietnam | ||
Prof. Dr. dr. Damayanti Rusli Sjarif SpA(K) | ||
Cipto Mangunkusumo National Referral Hospital, Indonesia | ||
Prof. Yin-Hsiu Chien | ||
National Taiwan University Hospital, Taiwan | ||
15.20 hrs – 16.05 hrs | ||
Challenges in the Diagnosis Journey - Empowering Patients’ Voices | ||
Moderator: | ||
Dr. Phichai Kanitcharaskul | ||
Medical Affairs Head, Takeda Thailand | ||
Panelists: | ||
Preeya Singhnarula | ||
President, Thai Rare Disease Foundation, Thailand | ||
Rajakanath R | ||
Programme Director, Rare Disorders Society, Singapore | ||
Dr. Durhane Wong-Rieger | ||
President, APARDO | ||
16.05 hrs – 16.15 hrs | Summary and Closing of Day 1 |
(BANGKOK LOCAL TIME GMT+7)
13.00 hrs – 13.10 hrs | Recap Session from Day 1 | |
13.10 hrs – 13.20 hrs | ||
Preeya Singhnarula | ||
President, Thai Rare Disease Foundation, Thailand | ||
13.20 hrs – 13.40 hrs | ||
APEC Action Plan on Rare Diseases: Focusing on New and Accessible Treatments | ||
Prof. Matthew Bellgard | ||
Chair of APEC Rare Disease Network | ||
13.40 hrs – 14.00 hrs | ||
Assoc. Prof. Dr. Cherdchai Nopmaneejumruslers | ||
Chairman and Working Group Committee of Rare Disease, NHSO and Deputy Director, Siriraj Hospital, Thailand | ||
14.00 hrs – 14.20 hrs | ||
Prof. Dr. Meow-Keong Thong | ||
University of Malaya, Malaysia | ||
14.20 hrs – 14.30 hrs | Break | |
14.30 hrs – 15.10 hrs | ||
Shaping a Future With No One Left Behind: Advancing the Rare Disease Act | ||
Moderator: | ||
Assoc. Prof. Dr. Cherdchai Nopmaneejumruslers | ||
Chairman and Working Group Committee of Rare Disease, NHSO and Deputy Director, Siriraj Hospital, Thailand | ||
Panelists: | ||
Dr. Carmencita D. Padilla, MAHPS | ||
Chancellor, University of the Philippines Manila | ||
Prof. Madhulika Kabra | ||
All India Institute of Medical Sciences, India | ||
15.10 hrs – 16.10 hrs | ||
Innovative Approaches for Sustainable Access: The Theory vs the Real World | ||
The Elephant in the Room: Gaps, Inequality, and the Way Forward in Funding and Financing | ||
Moderator: | ||
Assoc. Prof. Dr. Cherdchai Nopmaneejumruslers | ||
Chairman and Working Group Committee of Rare Disease, NHSO and Deputy Director, Siriraj Hospital, Thailand | ||
Panelists: | ||
Prof. Dr. Duangrurdee Wattanasirichaigoon | ||
Ramathibodi Hospital, Thailand | ||
Dr. Nguyen Khanh Phuong | ||
Vice-director of Health Strategy and Policy Institute, Ministry of Health, Vietnam | ||
Dr. Carmencita D. Padilla, MAHPS | ||
Chancellor, University of the Philippines Manila | ||
Prof. Ming-Chin Yang | ||
National Taiwan University, Taiwan | ||
16.10 hrs - 16.20 hrs | Our Unwavering Commitment to Rare Disease Patients Across SEA | |
Thomas Willemsen | ||
Area SVP Asia Pacific, Takeda | ||
16.20 hrs - 16.30 hrs | Recap Session of Day 2 | |
UNITING TO CREATE BRIGHTER FUTURES FOR PEOPLE WITH RARE DISEASES |
C-ANPROM/TH/RDM/0008: Jan’2